CDG & Allies - Professionals and Patient Associations International Network (CDG & Allies- PPAIN)
Where families’ own needs and ideas are transformed into research projects.
How you can help CDG community ?
The APCDG-DMR is leaded by affected family members that volunteer in an altruistic manner. We do not receive government funding. We rely solely on donations in order to continue our projects. Thus, we know how to do a lot with very modest budgets. However, we still need your donation contribution to help us do our work. Make a donation using Paypal, debit or credit card or bank transfer. Your donation will help fund advocacy efforts, awareness, education and research.
All details are found below. If you wish further information, please write us at: sindromecdg@gmail.com. Read the poster on the right and learn how your donation makes a huge difference in our patients and families lives.
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1. MAKE A SINGLE DONATION
How to do it?
- Using Paypal, debit or credit card.
- Go to DONATE bottom found below and follow the instructions. It’s quick, easy, secure and you'll be making a difference today. Please note, when you use Paypal system, once the payment is performed an automatic email confirming the payment is sent to you and to our organisation (APCDG-Associação Portuguesa CDG e outras Doenças Metabólicas Raras).
- Or performing a Bank Transfer; the account details are found below:
ACCOUNT NAME: APCDG-DMR (Associação Portuguesa CDG e outras Doenças Metabólicas Raras)
BANK NAME: Banco Português de Investimentos (BPI)
NIB: 0010 0000 5149 8770 001 14
IBAN: PT50 0010 0000 5149 8770 001 14
SWIFT/BIC: BBPIPTPL
ADDRESS: Rua António Andrade, 1138-B, 2820-287 Charneca da Caparica
COUNTRY: Portugal
Support our research,
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2. DONATE BY RESEARCH PROJECT
Help us funding the CDG research that matters most to you by donating to a research projects in which our Association is a established partner.
When you donate you specify the research project of your choice:
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Whichever project you pick, you’ll be helping to fund pioneering
work that will help to boost CDG knowledge.
work that will help to boost CDG knowledge.
How to support a specific research project?
- Using Paypal, debit or credit card. Go to DONATE bottom previously available and follow the instructions. It’s quick, easy, secure and you'll be making a difference today. Please note, when you use Paypal system, once the payment is performed an automatic email confirming the payment is sent to you and to our organisation (APCDG-Associação Portuguesa CDG e outras Doenças Metabólicas Raras).
- You can also perform a bank transfer. The account details are found in the section Make a single donation. Please specify which project do you specifically support. We kindly ask you, to send us by email the proof of payment at sindromecdg@gmail.com
Become a member
Why become a member? The APCDG provides services that support the continuous exchange of experience and knowledge of our community through educating, informing and linking the families and professionals globally.
Membership Benefits:
Write us if you are interested to be a member at: sindromecdg@gmail.com |
Give Time
Be a volunteer: We appreciate your desire to volunteer with the APCDG.
Your work will be recognized. We provide different Volunteering Certificates to certify your voluntary work: Bronze for achieving 25 hours of volunteering, Silver for achieving 50 hours of volunteering and Gold for achieving 100 hours of volunteering. Please contact us at: sindromecdg@gmail.com and request our Volunteer form. Please request at sindromecdg@gmail.com a Volunteer Form if you are interested in participating in any of our committees. We need volunteers to assist in several activities: World CDG Conference Event Coordination / Management Pre-Event
During the Event
Newsletter
Research
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Fundraising
Fundraising events benefit our organization greatly, as the APCDG survives solely on the generosity and donations of our members, friends and family. In order to safeguard against fraud, all APCDG fundraisers must be authorized in advance. To register a fundraiser, please contact Rosália Félix, at defesadopacienteapcdg@gmail.com
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Awareness
Please spread the word about CDG. Be creative! How?
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